Assisted living for disabled adults is often considered a middle ground between living full-time with family and becoming completely independent. Assisted living is a suitable option for adults with Down syndrome who need some type of help or supervision (such as medical assistance or guidance) but can manage most daily activities on their own. Assisted living programs are not available for those who need full-time nursing care or who are a risk to themselves or others.
Look for assisted living residences (ALRs) in your area. These types of homes are often sponsored by government agencies and offer partial or total coverage for those with low incomes or who are unable to care for themselves at the present time.
Keep in mind that the resident will be expected to work. Assisted living is for people who are able to provide for themselves. Once the resident gets a job, he will be responsible for paying a monthly fee that covers all expenses related to everyday living, from housing to food to ongoing care.
Contact the Social Security office in your state to inquire about Supplemental Security Income assisted living benefits. The program, which is geared to any adult with disabilities who can still function on her own, provides a guaranteed minimum earning so employed people can pay for their residences.
Search the database at the National Center for Assisted Living to get information on funding, residence options and tips on choosing the right place. See the Resources section below for a link. The website also offers help with making a successful transition into a facility and offers a series of links to organizations that can help in the search and selection of the right housing.
Visit a number of facilities before you choose one. Compare costs and services provided and make sure you pay special attention to how the residents live, including how they spend their time (socializing or inside their own quarters, for example), what their daily activities are and how many of them lead productive lives outside the housing facility.
Many assisted living houses operate based on the income of their residents, taking 70 to 80 percent of a person's income to cover expenses and allowing residents to spend the rest. In exchange, they offer complete care, covering all needs.
- Genworth. "Cost of Care Trends and Insights." Accessed Oct. 25, 2020.
- U.S. Centers for Medicare & Medicaid Services. "What Part A covers." Accessed Oct. 25, 2020.
- Social Security Administration. "Supplemental Security Income (SSI) in California," Page 2. Accessed Oct. 25, 2020.
- U.S. Department of Veteran Affairs. "Enhanced or Special Monthly Pension Aid and Attendance or Housebound," Pages 1-2. Accessed Oct. 25, 2020.
- U.S. Department of Veteran Affairs. "VA pension rates for Veterans." Accessed Oct. 25, 2020.
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